Can you do 65 “treatments” with me in the month of May? 🌹
I’m putting a bit of a different spin on my “65” challenge for the month of May in the hope that it will help raise awareness in a different way.
I’m challenging myself to 65 nebuliser treatments for the month, which is only 3 more than I would normally do. When I added them up I realised that’s a bloody lot!? When I’m healthy I spend around 30 hours a month doing airway clearance and inhaled medication.
I CANNOT STRESS THIS ENOUGH - this is on the lower end of things, there are people with CF who need to do A LOT more than this. Last month I had an infection that required an extra 2 nebulisers a day (so around 120 in the month - this is still on the lower end and something people with CF are expected to do while still working etc)
Access to Trikafta would hopefully mean a better chance at me maintaining my health and slowing down the damage that CF causes - this means I would ONLY need to do 65 treatments a month. Still sounds like a lot doesn’t it? To help get an understanding of how hard CF already is, how much time the therapies demand and how bloody important access to new medication is for our community - I challenge you to do 65 “treatments” in the month of May. I’m going to film myself doing one session (which is two treatments) and upload it for you to watch. You’ll need to sit in the correct position, concentrate on your breathing and imagine the discomfort of shifting, huffing, coughing and spitting thick secretions into a cup is. (For 45 minutes to an hour each day)
If you can’t do this, then I challenge you to make a donation to my fundraiser. Or if you can, hopefully you will want to donate when you realise how bloody tough it is. CF already takes so much from me, I don’t want it to take anymore.
Cystic Fibrosis is OBVIOUSLY a cause close to my heart and I've decided to do a 65 Roses Challenge this year. All funds raised will go to Cystic Fibrosis Tasmania (CFT) who provide valuable services to Tasmanians living with CF and their families. It's important to know that CFT DO NOT receive any Government funding. This means they rely on their own fundraising efforts from events, grants and sponsors.
Some of the important services and programs they provide are:
It's amazing how far CFT can make a dollar stretch. Please help me in my quest to raise funds for them in 2021 as they strive to offer new services to cater for the individual needs of Tasmanians living with CF.